A Non-Governmental Organisation, Initiative for Advancement of the Albinism Cause, has solicited support to sustain its skin cancer surgery programme for persons with albinism.
The Founder of INAAC, Joy Odigie, made the plea on the occasion of the 2024 International Albinism Awareness Day celebrated on June 13, in Benin, the Edo State capital on Thursday.
Odigie said that persons with albinism were prone to skin cancers due to the lack or minimal amount of melanin in their skin.
She said, “Melanin pigmentation gives the skin its dark colouration as well as provides natural protection for the skin against the harmful effects of the sun rays.
“When persons with albinism have prolonged exposure to UVA and UVB rays of the sun, they can develop skin tumours, freckles, and skin cancers.”
She said that the increasing burden of skin cancers among persons with albinism in Nigeria prompted the NGO to start a subsidized skin cancer surgery programme.
“Climate change has led to rising temperatures and heat waves, negatively affecting the skin of people with albinism in Nigeria.
“We are now recording increasing cases of skin tumours and cancers, especially among rural dwellers and poor persons with albinism who lack access to sunscreen lotions, skin checks, and services.
“That is the reason INAAC embarked on subsidized skin cancer surgery for persons living with albinism,” she added.
She said that since the inception of the programme two years ago, about four individuals have benefited, with four more waiting in line.
“We partner with a hospital in Benin to run subsidised skin tumours and cancer surgeries. The hospital offers a 20 to 30 per cent discount to patients, while the NGO covers an additional 30 to 40 per cent of the remaining medical bills,” she added.
She, however, said that the NGO was struggling to sustain the programme due to insufficient funding and the high cost of medical treatment.
“For instance, a type of surgery that used to cost about N120,000 now goes for about N250,000 due to the high cost of medical services and consumables.
“Also, some of the patients find it difficult to pay the subsided amount while those who live aside from Benin City find it difficult to pay transportation fees to access treatment at the hospital.
“We are calling on well-meaning Nigerians, government and Non-Governmental Organisations to support these subsided surgeries and if possible make it a free surgery programme’ she said
She added that the 2024 theme for the IAAD, “10 Years of Collective Progress,” highlighted the importance of collaborative efforts in advancing the well-being of individuals with albinism.
